Monday, August 24, 2009
Curtsy Bella - 2920 NE Blakeley St,. Seattle, Washington near U-Village.
On August 22nd Friends of FSH Research was honored to be the charity partner with a local boutique in Seattle. I was warmly greeted by Mary Jo and Danielle at Curtsy Bella as the shop opened. I enjoyed browsing through their shop full of great baby shower gifts, wedding gifts, party items, note cards and more! Friends of FSH Research was given 10% of the proceeds for the whole day!!
We are thrilled to have this new business partner take interest in and support Facioscapulohumeral Muscular Dystrophy research.
Please click on the flickr link above to take a visual trip through this fun shop -
or better yet, visit them in person or at their website www.curtsybella.com.
Monday, August 17, 2009
Kalynn - Cruising for a Bruisin'
I rode the Seattle to Portland Bicycle Classic on July 11&12, 2009 in order to raise money for FSH research. The overwhelming support of donations was incredible. Thanks to Marimichael and Melissa for donating their STP registrations to auction off. They raised a little over $300. As well as my Grandma who brought in a lot of cash donations. And to everyone who donaited online... Thank you!! It was encouraging to see that there are many people who are pulling for a cure for this form of muscular dystrophy. It affects so many peoples lives and as more people work together it will help to move us toward finding a cure. (to read more see her blog entry)
A huge THANK YOU to Kalynn!!
Thursday, August 13, 2009
Epidemiology and pathophysiology of falls in facioscapulohumeral disease
Corinne G C Horlings 1, Marten Munneke 1, Alice Bickerstaffe 1, Leonie Laverman 1, John H J Allum 2, George W A M Padberg 1, Bastiaan R Bloem 1* and Baziel G M van Engelen 3
She raised more than $3,000 for Friends of FSH Research, funds which will go directly
to FSH research projects.
Visit Kalynn's blog & view the photos from her ride.
Wednesday, August 12, 2009
This poem was written in honor of a gentleman with Facioscapulohumeral Muscular Dystrophy, Eva's father.
I thank Eva for sharing this with us all.
Tuesday, August 11, 2009
July 30, 2009
Scientists to gain new insight into earliest development of human diseasesJuly 30th, 2009
Human embryonic stem cells.In an Australian first, scientists from Sydney IVF Stem Cells and the Australian Proteome Analysis Facility (APAF) at Macquarie University will use human embryonic stem cells to track the development of genetic conditions such as down syndrome, Huntington's disease and facioscapulohumeral muscular dystrophy in their very earliest stages.
It is hoped the groundbreaking research will not only lead to a better understanding of how these debilitating diseases develop, but also to the discovery of new and effective drug treatments. (read the complete article here)
Monday, August 10, 2009
Picasa Web Albums - STP 2009 - STP 2009
Kalynn took on the challenge to ride her bike from Seattle to Portland in order to raise money & awareness for Facioscapulohumeral Muscular Dystrophy. Truly a tribute to what one individual can do - she raised almost $3000 for FSHD research!!
Our Thanks to Kalynn - What an Inspiration!