Wednesday, March 26, 2008

Deena Tannous Will Be Missed

Deena Tannous sitting with her friend Amanda

Deena Tannous Age 26, passed away peacefully in Daly City, March 24, 2008. Dearly beloved daughter of Peter and Basma Tannous; loving sister of Speero, Annie and William. She will be greatly missed by her numerous aunts and uncles, cousins, relatives from the Tannous and Imseeh family. Friends and family may visit Wednesday at 5pm and are invited to the Trisagion at 7pm and to the Funeral Mass on Thursday at 10 am ALL at St Thomas More Church, Brotherhood Way, SF. Committal Holy Cross Cemetery.

San Francisco Chronicle
March 25, 2008

Our thoughts are with the Tannous family. Deena was a much loved and admired young woman. To the many that live with FSH Muscular Dystrophy, Deena was an inspiration! Deena's absence will be much felt by her many friends in the FSH community.

The Colella Family
Kirkland, Wa


FiSHing for a Cure - FSH Muscular Dystrophy

Welcome to the Pacific Northwest Friends of FSH Research Blog ~

Please feel free to enter your comments and questions here regarding the activities of the Pacific Northwest Friends of FSH Research organization. To maximize the interaction of those living with Facioscapulohumeral Muscular Dystrophy with the researchers that are working in the laboratories this blog was established.

I hope this blog can be a resource to the community which cares about the individuals coping with the disabilities of FSH Muscular Dystrophy. This blog is for the more than 25,000 individuals in the United States and the many others around the world living with FSH. This blog is intended as a resource for their families, their friends and FSH researchers. This blog is intended as a resource for the many donors that have generously joined our mission in the hope of positively impacting in the lives of those with FSH today and those diagnosed with FSH tomorrow.

Together, we believe we can make a difference.

Pacific Northwest Friends of FSH Research - January 26 Auction

January 26th was the Friends of FSH Research's 4th Annual Auction -
With 286 in attendance, our friends helped to raise more than $210,000 for FSH research!!!
Thank you to all that attended & the many donors that made this auction possible.

Plans for this year, 2008-2009, will include the solicitation & funding of new FSH Muscular Dystrophy research projects & the supporting of a Seattle-based FSH research conference.

The application process for researchers interested in pursuing the study of FSH Muscular Dystrophy has been simplified in order to stimulate greater interest in the pursuit of FSH research. Step One will be a call for research proposal summaries which will require a brief description of the researcher's plan & study goals; from the pool of potential studies those which best fit our research aims will be asked to submit a detailed proposal and budget.

We hope to be able to fund 2 new FSH research studies this year or to expand the funding of studies currently in progress which justify a greater investment of our resources.