Thursday, June 30, 2011

Seeking Donations - Eager Recipient looking for Help!

Wondering if anyone out there that may read my blog might have ideas about how best to procure items for an auction.  I have done this now for over 7 years and every year it presents a huge obstacle.  I am dedicated and determined to raise money needed for FSH research yet, I find asking for help/donations continues to be hard.  I feel we do a great job of showing off the donor's items (such as artwork, jewelry, pottery, etc) and we put the donor's website's out there on our site and on all our written literature.... not sure if this is "giving back" enough to inspire spontaneous giving.
I wonder how other groups do this? in person contacts? emails? letters?
Feed back & ideas welcomed. (Donations greeted with great enthusiasm!!)

Friday, June 24, 2011

FSHD - Overview

Facioscapulohumeral Muscular Dystrophy - GeneReviews - NCBI Bookshelf

Facioscapulohumeral Muscular Dystrophy

FSH Muscular Dystrophy
RichardJLF Lemmers, PhD
Department of Human and Clinical Genetics
Leiden University Medical Center
SilvereM van der Maarel, MD
Department of Human and Clinical Genetics
Leiden University Medical Center

Excellent reference written by expert researchers in the field of FSH research.

Wednesday, June 22, 2011

GiveBig for FSHD research - June 23rd

                                    Dear Friends,Muscles for FSH

On June 23rd there is an exciting    opportunity to put more "muscle" in your donation to Friends of FSH Research. 
Give BIG is a community-wide giving challenge created by
The Seattle Foundation that will increase the size of your
donations to us. 

 This one-day, online charitable giving event will rally together our community on behalf of the amazing nonprofit organizations in King County - this includes Friends of FSH Research!

GiveBIG will grow your generosity in several ways:
·        Grow your gift! The Seattle Foundation and local businesses will match a share of every contribution made through The Seattle Foundation's online Giving Center between 7 a.m. and midnight on June 23.
·        Win a Golden Ticket! During the day, if your donation is selected at random, Friends of FSH Research will receive an additional $1,000 from GiveBIG's sponsors.

Your gift will help us support critical Facioscapulohumeral Muscular Dystrophy (FSH) research.  Help us make a treatment or cure to this debilitating condition a reality now!

Mark your calendar now! Make your donation to Friends of FSH Research between 7 a.m. and midnight on Thursday June 23 through our page in The Seattle Foundation's Giving Center. 

Help us make the most of GiveBIG!  Here are a few more things you can do in addition to making a generous gift:
1.      Mark your calendar today, so you don't forget to make a gift on June 23!
3.      Rally your friends to support Friends of FSH Research  on June 23!  Email, Facebook, Twitter & phone calls are great ways to spread the word and help us take advantage of GiveBIG. 
4. Be sure to share the link to our profile

Thank you in advance for Giving Big. With your help will truly be able to make a difference to those affected by FSH Muscular Dystrophy!! 

Terry Colella

PS: You can learn more about GiveBIG online

Tuesday, June 14, 2011

Expression Profiling of FSHD-1 and FSHD-2 Cells during Myogenic Differentiation

Recent Report from Italy - FSHD research News

Global gene-expression profiles of myoblasts from FSHD-1 and FSHD-2 patients and healthy controls in the context of myogenic differentiation are discussed.