Wednesday, July 20, 2011

Chris Carrino Foundation - The Power of One

Chris Carrino: Alumnus and Broadcaster's Personal Battle Becomes Public

Chris Carrino, GSB '92
Carrino has been battling Facioscapulohumeral Muscular Dystrophy (FSHD), a debilitating form of muscular dystrophy, for most of his adult life. (read complete story)

So glad to have a personality come forward and speak out for FSHD - increasing the public's awareness of this condition can only help in attracting new researchers to work on FSH and new donors to support their work.

Additionally, his leadership may help inspire others with FSH (and their loved ones and friends) to take action as well - seeing Chris's impact may show others what is possible.

I truly hope others will come forward.........

Sunday, July 17, 2011

FSHD Foundation - Netherlands

The great big work and life juggle - Business of Life -

Defining Moments: By Kees van der Graaf, IMD International, 137 pages, $40  (around Rs 1,800).

Van der Graaf’s oldest son, Bart, was diagnosed with FSHD (facioscapulohumeral form of muscular dystrophy) in 1992, and that changed his life forever. He realized he had to establish a balance between his personal and professional life. Along with his wife, RenĂ©e, Van der Graaf founded the FSHD Foundation. In 2008, at the pinnacle of his career, he decided to take early retirement from Unilever and devote his time to the foundation.

Read more about Kees Van der Graaf, his work, his family's effort to fund FSHD research and their work toward finding a treatment or cure for their affected son.
Inspirational story of one family's dedication - the "power of one."