Carrino has been battling Facioscapulohumeral Muscular Dystrophy (FSHD), a debilitating form of muscular dystrophy, for most of his adult life. (read complete story)
So glad to have a personality come forward and speak out for FSHD - increasing the public's awareness of this condition can only help in attracting new researchers to work on FSH and new donors to support their work.
Additionally, his leadership may help inspire others with FSH (and their loved ones and friends) to take action as well - seeing Chris's impact may show others what is possible.
I truly hope others will come forward.........