Thursday, April 23, 2009

Assumptions - Living with FSHD

My friend Anne has allowed me to share her story here on my blog. Please take a moment to learn more about living with Facioscapulohumeral Muscular Dystrophy.


We all make assumptions about others based on our own life experiences. Sometimes assumptions are helpful. Many times they are not.

The physical challenges faced by those with a disability are many but they can usually be overcome. It is the attitudinal barriers that are difficult to deal with. It is the attitudinal barriers that ultimately isolate and break the spirit.

The thoughts and stories I have shared are not things I usually talk about. This is a very personal piece but my reasons for completing the work are not personal. My intension is to “shed some light”…”create awareness”….of the damaging consequences that can result when people make assumptions …especially as they relate to individuals with a disability.

I hope my story will encourage reflection and dialogue.

Anne Harland
Canadian FSHD Network
Caledon, Ontario
905 843-1403


Anonymous said...

Top site, I had not come across earlier in my searches!
Carry on the excellent work!

Anonymous said...

Thanks for sharing this link, but unfortunately it seems to be offline... Does anybody have a mirror or another source? Please reply to my post if you do!

I would appreciate if a staff member here at could post it.


Anonymous said...

Wow neat! This is a really great site! I am wondering if anyone else has come across something
similar in the past? Keep up the great work!

Anonymous said...

Very enlightening and beneficial to someone whose been out of the circuit for a long time.

- Kris

Anonymous said...

Thanks for sharing us informative entries.