FSHD is the third most common muscle disorder and although no definite cure exists, careful management of the symptoms can lead to significant improvements in quality of life. This workshop brought together patient representatives, clinicians and scientists to define standards of care and discuss what is needed to lay the foundation for future treatments. Recommendations were based on evidence, when available, or on the consensus of expert opinion.
Four main topics were discussed:
* Clinical management
* Clinical trial readiness
Read more at http://www.muscular-dystrophy.org/research/news/2481