Van der Graaf’s oldest son, Bart, was diagnosed with FSHD (facioscapulohumeral form of muscular dystrophy) in 1992, and that changed his life forever. He realized he had to establish a balance between his personal and professional life. Along with his wife, Renée, Van der Graaf founded the FSHD Foundation. In 2008, at the pinnacle of his career, he decided to take early retirement from Unilever and devote his time to the foundation.
Read more about Kees Van der Graaf, his work, his family's effort to fund FSHD research and their work toward finding a treatment or cure for their affected son.
Inspirational story of one family's dedication - the "power of one."