Welcome to the Pacific Northwest Friends of FSH Research Blog ~
Please feel free to enter your comments and questions here regarding the activities of the Pacific Northwest Friends of FSH Research organization. To maximize the interaction of those living with Facioscapulohumeral Muscular Dystrophy with the researchers that are working in the laboratories this blog was established.
I hope this blog can be a resource to the community which cares about the individuals coping with the disabilities of FSH Muscular Dystrophy. This blog is for the more than 25,000 individuals in the United States and the many others around the world living with FSH. This blog is intended as a resource for their families, their friends and FSH researchers. This blog is intended as a resource for the many donors that have generously joined our mission in the hope of positively impacting in the lives of those with FSH today and those diagnosed with FSH tomorrow.
Together, we believe we can make a difference.