The FSHD Global Research Foundation is an Australian not-for-profit organization dedicated to finding a treatment and cure for Facio-Scapulo-Humeral Dystrophy (FSHD).
Founded by Australian former executive Bill Moss, FSHD Global is focused on making up for lost time since FSH research has been so limited, thus restricting our knowledge regarding this condition. Mr. Moss tells of his experience living with the disabling condition of Facioscapulomeral Muscular Dystrophy upon his life as a child and now as an adult in his 50's.
"You get to the point where you are so tired, you just can't do anything," Moss told BusinessDay in an interview in the Collins Street offices of PPB, the insolvency firm he chairs.To read more about Bill Moss, the impact of FSH upon his life, and why he founded this organization please read the article entitled "Foundation's Research to Make Up for Lost Time," written October 30, 2008.
"It starts that you can't walk up the stairs without getting really tired, then you can't walk up a lot of stairs, then you can't walk up any stairs, then you can't walk up a hill, then you can't walk. There's all these gradual things that happen."
I am very optomistic with the additional interest in FSH research here in the United States and worldwide in Italy, in Australia, the Netherlands and in France, that FSH research will make progress toward finding a treatment or cure.