This is a great resource for those, worldwide, diagnosed with FSHD, as stated in this message by one of the group's founders.
…."I wanted to find out more about this condition and help Lisa to meet other people with FSH-MD, I felt the best way to go about this was to start a support group". Lorraine
Reaching out & talking with other, telling people about FSH will increase the public's awareness of FSHD. Here is a resource for those with FSH to get support & learn from others that live with FSHD.