This is a very good explanation about FSHD and life coping with FSHD's impact.
Kristin Duquette is a Challenged Athlete training for the ParaOlympics.
Another excerpt from someone's story about FSHD:
It’s 1976 and flash bulbs pop as eager relatives urge seven-year-old Lilleen Walters to smile for the camera. Feeling fancy in her flower girl dress, she fights to curve her lips into a smile to please the wedding guests, but her muscles won’t obey. Days and months go by, and Lilleen still can’t smile. Doctors believe she is depressed, and recommend counseling and antidepressants. They don’t help. Years later, when she is 15, Lilleen is diagnosed with facioscapulohumeral muscular dystrophy (FSHD), a genetic, hereditary muscle disease that causes progressive muscle weakness.