Wednesday, June 10, 2009

French FSHD Resource - AMIS FSH Europe

This site includes a great deal of practical information on FSHmuscular dystrophy and aims to communicate on this illness. It isintended for people or relatives affected by this disease.

The main goal of this site is to:

* Break through the isolation of families coping with the disease
* Encourage information exchanges on experiences of those affected by this disease
* Share information on FSH
* Support research on FSH

This is a great site to find news about FSHD research - another great source of information for those living with FSHD and their families.

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