Saturday, June 6, 2009

Long Island FSHD Foundation

I am so pleased to announce the formation of another FSHD organization that is dedicated to promoting FSHD research!!
The Long Island FSHD Foundation, under the direction of Jennifer Valentine began this year and will hold their very first fundraising event on October 21, 2009. I wish them the best of luck & hope we will be able to work together in the future!!!


To learn more about this new organization visit their website at

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