Tuesday, November 3, 2009

Living with FSH Muscular Dystrophy

I found this on the internet today, written by Preston Craig - he writes eloquently about the life altering affects of Facioscapulohumeral Muscular Dystrophy....

Why I’m leaving

As many of you know, I have an ever progressing genetic disorder known as FSH Muscular Dystrophy. Earlier this Summer, I finally lost the ability to drive. As my disease has progressed, I’ve always managed to adapt to my physical losses and keep some amount of my independence. Driving was a major part of this. Now, if I want to leave my house, I am 100% dependent on other people to do so. If I so much as want to get a coffee, I have to schedule it with someone else. This is something I am not coping well with. In fact, I’ve been horribly depressed and miserable about it.

I’ve lost the ability to do a lot of things in my life, and every time I make an adaptation to counter it. When I had a hard time walking, I went into a chair and was actually relieved to be able to get around so easily. Now, I just need to adapt again and move to a community where I can take a cab, bus, or walk anywhere I need to go regardless of time of day or night.

To read more about this man and more from this blog go to kissatlanta.com/blog

1 comment:

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