Supporting research into Facioscapulohumeral Muscular Dystrophy.
Sunday, February 22, 2009
FshFriends - In front of the Public Eye
As a professional nurse, my marketing skills & business know how is pretty slim - I am always looking for ways to expand our support base to insure we will remain a viable organization. The cost of research is so terribly steep that we will not be able to fund a large research study, but instead our goal has been to provide "start up" funding to get scientists into the field of FSH Muscular Dystrophy research. By funding a pilot project, we hope that with that data the researchers will then be able to compete for larger funding from larger organizations such as the Muscular Dystrophy Association or the National Institute of Health.
In June of 2006 we gave our 2nd research award to Dr Dan Miller & Stephen Tapscott for their project entitled the "Study of FSH MD Related Defects in Human Myogenesis." Based on the data generated from this project, Dr. Dan Miller was able to win a $200,000 FSH grant from the MDA in 2007.
So now, in the post auction period, I will try to figure out other ways to raise money & get additional money for FSH research. So from our "home based" charity I will sell what I can via Ebay & Craig's list - Feel free to check out my listings on ebay!!
Posted by fshfriends at 9:24 PM
Labels: Ebay, FSH, FSH Muscular Dystrophy, FSHD
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